Prism: Shedding Light on Life with Duchenne

Prism: Shedding Light on Life with Duchenne

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In this refreshingly relatable memoir, David K. humanizes the experience of life with Duchenne muscular dystrophy. His many poignant recollections act as a prism, making the invisible visible, and demystifying the reality of having this neuromuscular disease. Among his many experiences:•Being a “normal” college student: living away from home, staying in a dorm, learning independence, partying •Confronting his early mortality at the age of 13, and being entirely unprepared to deal with it•Kissing a girl for the first time at age 19, and realizing that women could indeed be interested in someone with a severe disability •Learning he needed a ventilator the hard way: nearly suffocating when out with friends, and rushing home in a panicDavid does not sugarcoat anything, nor does he spout a lot of empty inspirational rhetoric. All he does is peel back the curtain and show what it’s really like to live with a disability.
  • Publisher: Medshoppe
  • Dimensions: 13.97 x 1.57 x 21.59 cm
  • Language: English
  • Print length: 272 pages
  • Item weight: 352 g
  • Book Type: Paperback
  • ISBN-10: 1736646303
  • ISBN-13: 978-1736646304
  • Publication date: 9 July 2021
  • Reading age: 13 - 18 years
A$25.25
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